Public Standing Group: Newborn Genomes Programme

Concepts

• research and development
• genomic data
• genomic findings
• public deliberation
• prenatal testing - reanalysing genomic data
• genomic data - clinical access
• newborn genomes programme
• genomic and wider health data - health records
• the boundaries - genomic futures
• newborn

Location

Description

This procurement focuses on the facilitation and management of a group of members of the public drawn from previous dialogues to deliberate on: The implications of storing a baby's genome over their lifetime Other issues, as they arise, in the delivery of the Generation Study - particularly those which would benefit from public deliberation The group will need to run for a period of one year and examples of the issues that might be deliberated on include: - Expectations of genomics over a babies' lifetime: exploring acceptable uses - Involving young people as they grow up: navigating consent and assent - Disclosing genomic findings over a person's lifetime: how, when, why, who? - Relationships between genomic and wider health data - Health records and the incorporation of genomic data - Clinical access to genomic data: exploring the boundaries - Genomic futures: newborn screening implications for the future of prenatal testing - Reanalysing genomic data: exploring parameters

CPV Codes

• 73000000 - Research and development services and related consultancy services
• 79420000 - Management-related services
• 85000000 - Health and social work services
• 98000000 - Other community, social and personal services

Indicators

• Contract is suitable for SMEs.
• Contract is suitable for VCOs.

Other Information

Please register on the e-tendering portal (Bravo) on the link provided. Once registered, you can find the opportunity under project title Public Standing Group on Ethics or the project reference "project_868". E-tendering portal https://public.bravosolution.co.uk/genomicsengland/web/login.html